The Motor Neurone Disease (MND) Association is the only national charity in England, Wales and Northern Ireland focused on improving access to care, research and campaigning for those people living with or affected by MND.
Find out more about who they are, their history and what they do at this link.
About Motor Neurone Diseace
A detailed guide to MND including symtoms, types , tests, daily life and concerns is available at this link.
Support and Services
For more infrmation of the services and support available if you are caring for someone living with MND click the following links:
DiAMoND patient decision aid
Using joint funding from Marie Curie and the Motor Neurone Disease Association, researchers at Southampton University have implemented a web-based patient decision aid for people with motor neurone disease considering a gastrostomy feeding tube, availabe at this link.
The MND Asscocation has a helpline called MND Connect that gives people access to a quick route to get advice, practical and emotional support and directing to other services and agencies availailbe from:
Monday to Friday between 9am - 5pm and 7pm - 10:30pm.
Calls to this number are free from landlines and mobile phones within the UK and do not appear on itemised bills.
Thunb Print is the association's quarterly members' magazine Thumb Print, with the latest MND care, research and campaigning news mixed in with inspirational stories, interesting articles, fundraising ideas and more, available here.
MND Matters the MND Association podcast
MND Matters is the MND Association podcast sharing experiences, offering informal advice and support, and raising awareness. MND Matters is available at this link.
Useful organisations and internet sites
A comprehensive index of links to a wide range of associated subjects is available at this link
Full details of how to be involved with with fundraising, making a donation, volunteering your time and skills or campaigning can be found at this link.
Full contact details can be found at this link.
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